Tuesday, October 20, 2009

Life...

and trying to live the one you have which is not always the one you expected.

I admit the life I have is not the one I thought I would have when Josh and I imagined the family we would create together.

Do I love my children? Yes, without a doubt.

Would I change them? No, that's not for me to do. God created them the way they are for a reason.

Would I do everything I can to help make life easier for them? In a second.

Usually I use this blog as a place to share funny stories about the girls to our family and friends or tell yet another story in what has become my personal medical drama but lately I know it's been quiet.

Kind of along the lines of if you don't have anything nice to say then don't say anything at all.

Ok that's a bit dramatic but life has been a bit bumpier then usual and we have been looking for answers and not finding any so here I am laying it all out there for you guys.

And asking for prayers. Prayers for guidance. Divine intervention. Healing. Strength. Faith. Love. Hope. Answers. Plus the ability to know when presented with the correct answers.

As you all know Grace has not always been the easiest child. Is she loving, yes of course she can be but we all know when that switch flips all bets are off and since we have been back from the states that switch has been flipping ALL. THE. TIME. The meltdown have been increasing in intensity and frequency.

Plus the psychiatrist that she was seeing has left the island and the psychologist we see is leaving next month. There is no one coming to replace either one. There will be a child psychiatrist that will come once a year for two weeks. Not good news.

The resources available off base are very limited but I researched what was there and we went and saw a doctor last week and it was not a good experience. We will not be seeing him again. His advice was not anything we are willing to do and when we told her doctors what he recommended they agreed with us that they were not appropriate choices for her. There is one more doctor out in town that we have an appointment with next week so we will see how that goes. Honestly it couldn't be worse then the doctor we saw.

She is officially diagnosed with ADHD and ODD with red flags for early onset childhood bi-polar disorder. For now the visiting child psychiatrist is changing around her adhd medications and we are going to see how she responds to that.

At this point it seems to come down to two choices. We stay here in Guam as a family but Grace isn't going to receive services other then our family doctor strictly to refill prescriptions.

Or Grace, Brianna and I return to the states and Josh stays here until summer '11 but Grace will be able to get the services she needs.

Neither are choices I want to choose.

7 comments:

Natalie said...

You have been very quiet. This is a really hard time for you. All we can do it send our hopes and hugs and love. You and Josh will find the right decision and somehow, like it always does, life will work out OK. So, hopes, best wishes, and love.

AKBrady said...

Darlin', my heart hurts for you and feels your pain. I'm living the similar life and it sure is no fun.
Please know we are all praying for you up here and if you have any questions at all, please ask.
Start keeping a journal, not only for you to reflect your feelings but also for the journey you are just beginning w/ Grace; you'll need to refer time after time and it will be much easier if you can just go back to dates on paper, and not try to remember in your head.
Take care and hold steady. You two can do it.

dorothy said...

SO SKYPE ME OR EMAIL OR CALL...FOR GOODNESS SAKE! Hugs till then. d

Jolie-Anne said...

So sorry that things are so rough. That's a tough decision. I'll be thinking of you all. I can't say that I know what I would do in your situation.

crazysox said...

Oh Jeni! We'll be praying for you guys. Love ya!!

Amanda~n~Adam said...

You are an amazing mom! Your courage and stamina are commendable! Grace is blessed to have an advocate like you on her side! LOVE TO YOU ALL!

Meredith said...

Wow, I have been out of touch for awhile had no idea what was going on. I know you and Josh will make the best decision for your family even though it will be hard. Best of luck to you all!